My daughter and I didn't choose disability, she certainly didn't; she was born disabled. There's not a lot we can do to change our 'scrounger' status, either we take the 'handouts' (social security) from the same pot my husband paid into for years I should add, or we starve!
Of course, my 'Littlie' (going on 10, with a mental age of 5) has no idea that (Thanks to Tory/media rhetoric) our family would be judged negatively (by some), she has no idea that Cameron and Co have attempted to create a Britain that may not welcome the disabled adult she will one day become.
I know though! I know, and I am afraid, afraid for myself, afraid for my disabled friends, afraid for all (reliant) disabled people living in Britain.... but above all else, afraid for my child!
Many disabled people have had their lives turned upside down over the past five years - some have not survived the onslaught.
Vulnerable people, who (and I should know) are desperately afraid - deeply affected by right-wing-scrounger-propaganda, and increasingly concerned about their future.
People who's symptoms of illness/disability (in many cases, including my own) have been greatly exacerbated by an overwhelming fear of the next WCA (Work capability Assessment).
An
Mentally ill people who are terrified by even the idea of having to expose themselves (face to face) at a ten minute (tick box) assessment (to a complete stranger) who is unlikely to be qualified to assess Mental Illness, and even less likely to empathise.
People who are despairingly aware, that even if they are lucky enough to pass the assessment, it won't be long before the process begins again.
Many are self-harming, some feel/or have felt that suicide may be a better option than continuing to battle both debilitating mental illness/disability, and the powers-that-be.
As most of you know (physical disabilities aside) my own symptoms of Mental Illness interfere with my ability to cope with many everyday activities without the support of my husband, and those things I do manage alone, are only doable if he's nearby.
I could give for instances but we'd be here all day; so I won't.Most significantly, for the purpose of this post, is that my disabilities prevent me from working, and also from caring for my disabled child alone....and as I'm unable to function at home or outdoors without support, it also prevents my husband from working.
Although, given that I care for my disabled child (to the best of my abilities) with hubby's help, and he cares for us both (full time) with no help, I'd ask those who see fit to judge us (with all due respect, Mr Cameron) to define hard-working-people.
I'm terrified of the benefits system. I fear the dreaded brown envelope (DWP letter) every day - the sound of the post man fiddling with the letter box puts me on edge before anything hits the mat - the site of any brown envelope on the hall floor puts me in a state of panic, which continues to have a negative affect on me long after hubs has checked the contents and reassured me that today is not the day that I will have to begin AGAIN the process of proving how disabled I am!
It's a daily, often overwhelming fear; I have no idea when the next letter will come, but one thing is certain... It will come!
If, after that next assessment, the powers that be decide that we are no longer (in their opinion) entitled to support, I will STILL be disabled, my daughter will STILL be disabled, and my husband will STILL be a full time carer. The ONLY difference (other than making us sicker) such a decision would make; is that we would have nothing to live on!
****
Thank you for allowing me to share
Kimmie x
NB: The above thoughts, observations, opinions, are based on my own experiences, and those of disabled people I know, or who's experiences I have read about. I do not presume to speak for all disabled people.
****
You'll find more details about the WOW-campaign HERE
The petition (should you wish to sign it) is HERE
You can follow/support the WOW-campaign on twitter HERE
Am not from UK, can u sign petition if not living nor a citizen. Here in USA, have done some mental health advocacy, my overall health has kept me from doing any except online signing petitions.
ReplyDeleteHi, Joan. Unfortunately only UK citizens can sign. You could help by sharing the petition with your UK friends though, that would be much appreciated :)
DeleteThank you for taking the time to read/respond.
All the best to you and yours, Kimmie.
I can totally relate! I don't live in the UK, but we have similar massive cuts thankt o a right-wing government in the Netherlands. So far, I've been able to stay on benefits and receive long-term care, but this might well change.
ReplyDeleteI can relate to that... am currently receiving disability benefit myself, but as you say, it might well change, and fearing that tough... the uncertainty is incredibly hard to live with.
DeleteThank you for taking the time to read/comment.
I just signed the petition. Caring for family members who can't manage without your care, on an indefinite basis, must be the hardest work of all. No start and finish work schedule, no holiday, no sick leave and no pay! And emotionally very exhausting. Thanks for raising awareness of this issue, I didn't know about the cuts before. Visiting from Weekend Blog Share.
ReplyDeleteThank you, Ruth... there are many who are unaware, largely because (for the most part) the cuts/effects are not reported by mainstream media.
DeleteIt was kind of you to take the time to read/comment/and sign the petition. Thank you!
So sorry to hear about your circumstances Kimmie. The situation is difficult without the added uncertainty and stress imposed by red tape. I hope you get many signatories to the petition.
ReplyDeleteThis is such an important issue to be talking about and I'm so sorry to hear that you're going through it at the moment, that's awful. I was only just talking about this very thing the other day with my Dad, and it seems that the government keep on cutting the resources which are needed the most, especially in terms of caring for things like this! Will sign the petition definitely and I hope things can pick up soon! Thank you for your lovely comments on my last post too. - Tasha
ReplyDeleteHi Kimmie. I've just come across your blog via Bloggers Helping Bloggers and have been very moved by your writing. I have a long-term chronic condition too and thanks only to the support of my wife I have decided not to apply for Disability Living Allowance because I don't want the stress of the new procedures. The stress would make my condition worse. Well done for publicising this and I have signed the petition.
ReplyDelete